She is just one of five known people in the world to be diagnosed with an ultra-rare genetic condition that means little Eleanor must undergo infusions for 17 hours a day.

But the "happy" little three-year-old is showing no signs of slowing down as her family help to give back to those who have helped them.

Eleanor is currently the sole child in the UK living with Osteo-oto-hepato-enteric (O2HE) Syndrome and is only the fifth known in the world to have it.

She has also been diagnosed with another rare genetic condition called Mitochondrial Disease.

Born in November 2019, it was just days after her birth when she became very sick and was admitted to the neonatal intensive care unit at the Norfolk and Norwich University Hospital.

Laura Timm, her mother, said: "She needed lifesaving treatment but weeks of tests proved inconclusive, as to why she was so ill.

"Eleanor was getting weaker each day."

She was eventually enrolled on the Next Generation of Children research project, which was able to diagnose the tot with O2HE Syndrome.

Mrs Timm, from Norwich, added: "She was born with intestinal failure because of the syndrome and spent a long six months in hospital.

"She was then discharged home on parenteral nutrition - a type of feed that bypasses the digestive system by going straight into the blood. It comes with the daily risk of sepsis.

"Her infusions run for 17 hours a day, so our lives revolve around it."

When Eleanor’s liver started to fail in October, she was given a multi visceral organ transplant and is still recovering in critical care at King’s College Hospital, London.

"She hasn’t had an easy three years, but she’s fought, and continues to fight, so hard to be here.

"She’s the most special, beautiful, happy little girl and we’re blessed to have her."

Mrs Timms and her husband Mike also have another daughter, five-year-old Evie.

A black-tie ball, organised by Mrs Timm and her sister-in-law Sophie Baker and held at the Royal Norwich Golf Club, raised £14,000: £3,500 each for East Anglia’s Children’s Hospices, the Sick Children’s Trust, the Lily Foundation and Harry & Stan’s Transplant Troopers.